{"id":14869,"date":"2014-05-20T07:51:11","date_gmt":"2014-05-20T07:51:11","guid":{"rendered":"http:\/\/demo.qodeinteractive.com\/bridge95\/?page_id=14869"},"modified":"2020-05-13T10:19:58","modified_gmt":"2020-05-13T08:19:58","slug":"home","status":"publish","type":"page","link":"https:\/\/www.eurbg.org\/portal\/","title":{"rendered":"Home"},"content":{"rendered":"

[vc_row row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern” css_animation=””][vc_column][\/vc_column][\/vc_row][vc_row row_type=”row” use_row_as_full_screen_section=”no” type=”grid” angled_section=”no” text_align=”center” background_image_as_pattern=”without_pattern” padding_top=”40″ padding_bottom=”40″ css_animation=”” el_class=”custom-icon-styles”][vc_column][vc_column_text]<\/p>\n

EURbG<\/span> <\/strong>is a pan-European partnership<\/strong> between professionals involved in the care of retinoblastoma and families and patients affected by retinoblastoma with a common goal to share and disseminate knowledge and experience within Europe<\/strong>.<\/h4>\n

There is a shared vision to identify the problems within RB management and develop tools to address them through the creation of a retinoblastoma network. This network aims to crystallize into a formal partnership an extensive group of RB<\/strong> specialists from all major centres into a single structure with genuine European dimension.<\/h4>\n

[\/vc_column_text][\/vc_column][\/vc_row][vc_row row_type=”row” use_row_as_full_screen_section=”no” type=”grid” angled_section=”no” text_align=”center” background_image_as_pattern=”without_pattern” background_color=”#f9f9f9″ padding_top=”40″ padding_bottom=”40″ css_animation=”element_from_bottom” transition_delay=”150″][vc_column][vc_column_text]<\/p>\n

Objectives<\/h2>\n

The main objectives of the group are to:<\/h4>\n

[\/vc_column_text][vc_row_inner row_type=”row” type=”full_width” text_align=”center” css_animation=”element_from_bottom” transition_delay=”300″][vc_column_inner width=”1\/4″]<\/i><\/i><\/a><\/span>[vc_separator type=”transparent” up=”34″ down=”0″][vc_column_text]<\/p>\n

Improve the care of patients with retinoblastoma<\/h5>\n

[\/vc_column_text][vc_separator type=”transparent” up=”25″ down=”0″][vc_column_text]<\/p>\n

This will be achieved through shared knowledge and understanding between professionals utilising web-based and mulit-media resources to support clinical decision-making, the development of evidenced-based best practice guidelines which will be disseminated throughout the group, pan-European access to a virtual consultation system for challenging cases<\/p>\n

[\/vc_column_text][vc_separator type=”transparent” up=”40″ down=”0″][\/vc_column_inner][vc_column_inner width=”1\/4″]<\/i><\/i><\/a><\/span>[vc_separator type=”transparent” up=”34″ down=”0″][vc_column_text]<\/p>\n

Improve access to specialist retinoblastoma care across Europe<\/h5>\n

[\/vc_column_text][vc_separator type=”transparent” up=”25″ down=”0″][vc_column_text]<\/p>\n

The group will record and update information regarding access to and availability of specialist expertise in the management of retinoblastoma (such as intra-arterial chemotherapy delivery) to facilitate cross-border managment. It is hoped that the EURbG will gain recognition from the European Commission as a expert Reference Network within the wider Paediatric Oncology reference network Expo-R-Net<\/p>\n

[\/vc_column_text][vc_separator type=”transparent” up=”40″ down=”0″][\/vc_column_inner][vc_column_inner width=”1\/4″]<\/i><\/i><\/a><\/span>[vc_separator type=”transparent” up=”44″ down=”0″][vc_column_text]<\/p>\n

Improve knowledge and understanding of retinoblastoma<\/h5>\n

[\/vc_column_text][vc_separator type=”transparent” up=”25″ down=”0″][vc_column_text]<\/p>\n

The group aims to support both basic scientific and clinical research studies to enhance knowledge of retinoblastoma disease mechanisms and to determine better diagnostic and therapeutic measures<\/p>\n

[\/vc_column_text][vc_separator type=”transparent” up=”40″ down=”0″][\/vc_column_inner][vc_column_inner width=”1\/4″]<\/i><\/i><\/a><\/span>[vc_separator type=”transparent” up=”34″ down=”0″][vc_column_text]<\/p>\n

To provide access to reliable, consistent information<\/h5>\n

[\/vc_column_text][vc_separator type=”transparent” up=”25″ down=”0″][vc_column_text]<\/p>\n

to patients and families affected by retinoblastoma and signpost families to online or face-to-face support groups within their geographical area<\/p>\n

[\/vc_column_text][vc_separator type=”transparent” up=”40″ down=”0″][\/vc_column_inner][\/vc_row_inner][vc_separator type=”transparent” up=”52″ down=”0″][\/vc_column][\/vc_row]<\/p>\n","protected":false},"excerpt":{"rendered":"

[vc_row row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern” css_animation=””][vc_column][\/vc_column][\/vc_row][vc_row row_type=”row” use_row_as_full_screen_section=”no” type=”grid” angled_section=”no” text_align=”center” background_image_as_pattern=”without_pattern” padding_top=”40″ padding_bottom=”40″ css_animation=”” el_class=”custom-icon-styles”][vc_column][vc_column_text] EURbG is a pan-European partnership between professionals involved in the care of retinoblastoma and families and patients affected by retinoblastoma with a common goal to share and…<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"open","ping_status":"open","template":"full_width.php","meta":{"footnotes":""},"_links":{"self":[{"href":"https:\/\/www.eurbg.org\/portal\/index.php?rest_route=\/wp\/v2\/pages\/14869"}],"collection":[{"href":"https:\/\/www.eurbg.org\/portal\/index.php?rest_route=\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.eurbg.org\/portal\/index.php?rest_route=\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.eurbg.org\/portal\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.eurbg.org\/portal\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=14869"}],"version-history":[{"count":30,"href":"https:\/\/www.eurbg.org\/portal\/index.php?rest_route=\/wp\/v2\/pages\/14869\/revisions"}],"predecessor-version":[{"id":16019,"href":"https:\/\/www.eurbg.org\/portal\/index.php?rest_route=\/wp\/v2\/pages\/14869\/revisions\/16019"}],"wp:attachment":[{"href":"https:\/\/www.eurbg.org\/portal\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=14869"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}