Description of Working Group:
A Nursing and Allied health professional group to build relationships, share experiences and to collaborate. Create consensus guidelines for evidence-based Psychosocial and supportive care. Assessment strategies to evaluate wellbeing and support required in children and their families. To work on the development and dissemination of pratical clinical tools to support implementation and to raise awareness in these areas of care.
Objectives of Working Group:
To identify ways to improve patient experience and outcomes. Follow-up strategies to ensure psychological and vision support. Look at outcomes for children in the short and long term to plan supportive care accordingly. Work in partnership to develop research and improve evidence based Psychosocial and supportive care in retinoblastoma. Support collaboration and communication between the multisciplinary team.